Well sitting protocol is going a little bit better, depending on what time of the day they try to get Nick up and in his chair. He doesn't do real great in the mornings. Not enough solid food in his stomach. For breakfast he usually just has a protien shake, so we are going to try to have him eat some soda crackers before we sit him up. In the afternoon he does much better as long as he drinks plenty of water before hand. They have to give him medication about 30-45 minutes before sitting him up, and then really watch his blood pressure. It is really a big balancing act. We are hoping that he can get him outside to see fireworks this weekend.
Nick really wishes he was home so he could do the Menan festivities and the fireworks. I am trying to think what I could bring in for him to eat to make him feel a little bit better. Any ideas please let me know.
